Do you live with advanced liver disease and interested in taking part in a workshop?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure.
Cases of liver disease are rising alarmingly and with much inequity in the provision of care, as inpatient mortality rates from cirrhosis are several times higher in some areas of England compared to others. There is a lot of research activity, but few successful new treatments have come into routine care. It is imperative that we review approaches to care delivery, research translation into practice and focus on the research questions that can deliver better outcomes for patients.
There are two afternoon workshops in November, one in Bristol and one in Liverpool, to bring people together to take a ‘deep dive’ into the context, barriers and important questions for UK research into liver failure. We are very keen for patients, carers and relatives from each region to get involved. UK CLIF will pay travel expenses and PPI engagement fees.*
Wednesday 22nd November, 2:00-4:30pm, Engineers House, Bristol Click here to book Bristol
Wednesday 29th November, 2:00-4:30pm, Radisson Blu Hotel, Liverpool Click here to book Liverpool
Or email the UK CLIF Network Facilitator to reserve your place: [email protected]
Workshop outline
- Refreshments on arrival
- Welcome and introductions
- All participants rotate around small group discussions
- Group consensus process
- Summary of next steps
Discussion groups will work together to consider:
- Deficiencies in research infrastructure, such as barriers to patient involvement in clinical trials.
- Challenges and opportunities for research partnerships including with patients and carers.
- Clinical factors affecting research delivery.
- Clinically important research questions for the next 5 years.
The workshops aim to build consensus on key issues to feed into the UK CLIF submission of priority research questions to the National Institute for Health and Care Research (NIHR).
*In line with national guidance from NHS England.
