Patient stories

Read the stories of people who have been affected by liver disease. You can filter to find stories about adults or children, or to find specific conditions.

Thank you to everyone who has shared their story to raise vital awareness of all types of liver disease.

Share your story

Arun’s story

"Both my donors gave me the gift of life, but I’ll never get to meet them or thank them"

Charlie’s story

"I had only just brought my new baby home and now I was being told he needed life-saving surgery "

Nadia’s story

"My consultant tried to tell me what would happen if I didn’t take my meds, but I thought it wouldn't happen to me"

Mahalia’s story

"I remember feeling guilty because she was the healthiest child on the liver ward"

James’ story

"If you are on the list or waiting to be listed KEEP GOING, a liver transplant changes your life!"

Charlotte’s story

"The charity provided a space to connect and chat with people in similar situations"

Tracy’s story

"I was diagnosed with MASLD, severe fibrosis and early cirrhosis. It felt like my world was falling apart"

Summiya’s story

"Knowing what I know now, my advice to other parents in relation to childhood liver disease is to trust your instincts"

Gemma’s story

"We now know that she should have been referred for a blood test between two and four weeks of age to investigate the causes for her jaundice. Putting her in daylight and breast feeding was never going to clear it. "

Niamh’s Yellow Alert story

"Yes, she was jaundiced but we knew that lots of babies are jaundiced so we didn’t really worry about that. The reason our health visitor sent us to hospital at 12 days old was because she noticed a hemangioma"

Kim’s story

"I was determined not let my illnesses rule my life"

John’s story

"My life before and after transplant is like night and day."

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Would you like to share your story?

Every story has the power to make a difference. By sharing your experience of liver disease or liver cancer, you can help raise awareness, challenge stigma, inspire others and influence positive change. Whether you’re living with a liver condition, supporting someone you love or have experienced liver transplantation, we’d love to hear from you.

Get in touch