Nurse-led helpline

Calls and emails are always answered by a specialist nurse

If you or someone you love has been affected by liver disease or liver cancer, or you are worried about your liver health, our free helpline is here for you.

Call 0800 652 7330 between 9am and 4pm Monday to Friday (excluding bank holidays) or email [email protected]

Our nurse-led helpline service can currently only answer calls relating to liver conditions in adulthood. If you are looking for support with a childhood liver disease, you can still call the number above and will be put through to our children and families team.

Make a donation

Demand is higher than ever

Demand for the helpline is currently very high and there are only ever 2 to 3 nurses working to cover the whole UK.

If you are able to help us to be there for more people please consider a donation

Supporting you throughout your journey

Being diagnosed with any disease is a confusing and worrying time for anyone, but with over 200 liver conditions, it is difficult for patients and family members to get the answers to the questions about their specific diagnosis. 

We support over 3,000 people each year with a range of conditions, often calling us more than once supporting throughout their diagnosis or situation.

Calls and emails are always answered by a specialist nurse. 

More support for adults

Support groups

Many people affected by liver disease or liver cancer find comfort in connecting with others who understand their situation.

Our support groups meet face to face and online, to allow you to meet people who have been where you are.

Find out more

Online community

Our online liver health community provides an invaluable source of peer support for adults affected by liver disease.

Members can post questions, share experiences and hear from others on how they or those close to them are managing their condition.

Find out more

Living with a liver condition

Having a liver condition can affect many parts of your life.

The pages in this section have great infomation ranging from making the most of your medical appointments, to work, money and holidays.

Find out more

Find answers

FAQs

What happens when I call the helpline?
  • One of our expert liver nurses will answer the phone, introduce themselves and ask about your situation
  • We’re here to listen to you, on your terms – so you can start wherever you want and share as much as you wish
  • Our nurses will take some notes, just to make it easier if you call again. These will always be kept confidential
  • If needed, the nurse may email you with follow-up information and links to resources after the call or arrange for information to be sent in the post
  • If you call again and have more questions, the nurses can sometimes arrange for a call back if needed
Are you able to interpret liver test results?

Our helpline nurses are unable to interpret liver blood tests or imaging test results.

It is important you speak to your own doctor or nurse about this, but we can provide guidance on what these tests involve, their purpose, and what they can tell you about your liver health.

What are the expert nurses able to discuss with me?

We’re hear for you, and can listen and talk to you about many aspects of liver health, liver disease, and liver cancer. Here are a few of the common subjects we cover:

  • I’m worried about my own, or a loved one’s, liver health. What should I do?
  • What are the tests for liver disease?
  • How do I manage my symptoms, where should I start?
  • How can I make the most of my next appointment?
  • Are there other treatment options?
  • Are there any clinical trials that I can be involved with?
  • How do I support a loved one who has been diagnosed, while also looking after myself?
Is there anything you can't talk about?

The information provided by our nurse-led helpline is not a substitute for your own healthcare provider who has access to your medical notes, and should not be used for diagnosing or treating a health problem or disease. If you have worrying symptoms or you feel unwell you should consult your doctor.

We are not able to diagnose any conditions, or interpret blood test results. But we can help you to understand your diagnosis and what the often complex terminology means. We are also not able to offer an opinion on particular hospitals, but we can advise you about questions you can ask to help you make the most of your appointments.

Please be aware that the helpline is not an emergency number and cannot give medical advice. If you have a specific medical enquiry please call 111, or in case of emergency call 999.

We will not tolerate inappropriate, abusive or threatening behaviour towards our nurse team and if this happens, we will end the call and block abusive callers from using our service.

Is there an answerphone? Do you offer call backs?

Yes, you can leave a message and we will call you back within two working days.

I am not able to get in touch via phone, are there other options?

Yes, you can email us at any time at [email protected]. Emails are answered during the helpline operating hours of 9am – 3pm Monday and 9am -4pm Tuesday – Friday (excluding bank holidays).

What happens to my personal details? Are calls recorded?

All personal details are kept securely and will never be shared with anyone. For more information read our privacy policy.

Helpline calls are subject to monitoring by our Nurse Manager and on occasion calls will be recorded. We do this to train staff and to monitor and evaluate the service.

Do you charge for this service?

No, our nurse-led helpline is completely free and you will not be charged for any calls made from within the UK. As a charity, we are not a part of the NHS and do not receive NHS funding.

We rely on donations to run our helpline service. If you wish to make a donation you can do so here.

Do you accept calls from outside the UK?

Yes, we can take calls from outside of the UK, but only to answer general information requests about liver disease and liver cancer. We are unable to offer advice about non-UK healthcare.

Please note that calls from outside of the UK may incur a fee from your network provider. We are unable to offer call backs to non-UK numbers.

Aggressive or abusive Behaviour
We understand that people can become angry when they feel that matters about which they feel strongly are not being dealt with as they wish. However, if that anger escalates into aggression towards our helpline nurses, we consider that unacceptable. Any aggression, abuse, or inappropriate behaviour directed towards our staff may result in callers being blocked from the helpline service.

More from Liver UK

Check your risk

Check your risk

Find out if you’re at risk of liver disease using our simple at-risk checker for adults.

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Support us

Support us

Make a donation to help ensure everyone affected by liver disease gets the information and support they need.

Find out more

Keep up to date

Keep up to date

Keep up to date with the charity’s news by registering for our email newsletter & updates.

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