Living with a liver condition
Additional sources of help
We’re here for every UK family who is affected by liver disease in their child. Sometimes, however, you may need particular help with a specific issue or may wish to speak to someone urgently. On this page, we’ve listed some of the organisations who may be able to provide additional support.
The information on this page is for:
- Parents of children with a liver condition.
- Young people with a liver condition.
- Family, friends, carers, and healthcare professionals.
On this page:
Adult mental / emotional health
Samaritans – www.samaritans.org/
Samaritans provide a 24 hour 365 day a year service for anyone who is struggling to cope and needs someone to listen.
Shout – www.giveusashout.org/
24/7 text support for anyone in the UK who needs support. Text ‘shout’ to 85258.
Mind – www.mind.org.uk/
Mind is a charity providing information and support to anyone experiencing mental health problems.
Qwell – www.qwell.io
Qwell is a free, anonymous online mental health and wellbeing service tailored to adults. Live text chat 24/7, 365 days a year.
Hub of Hope – www.hubofhope.co.uk
Hub of Hope is the UK’s largest mental health support directory and includes support for adults, young people and urgent help.
Children’s / young people’s emotional health
NHS Blood and Transplant – www.nhsbt.nhs.uk
Helps people to donate blood, organs, tissues or stem cells to help someone else in need.
Childline – www.childline.org.uk
Childline is a free confidential service for anyone under the age of 19 to talk about anything at any time.
Young Minds – www.youngminds.org.uk
Young Minds is a UK charity specifically focused on providing young people with information and advice to help support their mental health.
Kooth – www.kooth.com
Kooth offers free, safe and anonymous 1:1 support for young people.
Health-related support
NHS Blood and Transplant – www.nhsbt.nhs.uk
Helps people to donate blood, organs, tissues or stem cells to help someone else in need.
PFIC Network – www.pfic.org
The PFIC network is an international organisation to improve the lives of patients and families worldwide who are affected by Progressive Familial Intrahepatic Cholestasis.
PSC Support – www.pscsupport.org.uk
PSC Support is a UK organisation dedicated to improving the lives of people affected by primary sclerosing cholangitis (PSC).
Bereavement
Cruse – www.cruse.org.uk
Cruse is a national bereavement support charity with the aim of helping anyone, no matter how long they have been grieving.
The Compassionate Friends – www.tcf.org.uk
The Compassionate Friends is dedicated to supporting bereaved parents, siblings and grandparents who have suffered the death of a child from a month old from any cause.
Winston’s Wish – www.winstonswish.org
Winston’s Wish provides bereavement support to children, teenagers and young adults (up to age 25).
Support for specific geographical areas
Community Advice and Listening Line – www.callhelpline.org.uk
Community Advice and Listening Line offers emotional support on mental health matters to the people of Wales.
Breathing Space – www.breathingspacescotland.co.uk
Breathing Space is a confidential phoneline for anyone in Scotland age 16 years or over, feeling low, anxious or depressed.
Lifeline – www.lifelinehelpline.info
Lifeline is Northern Ireland’s crisis response helpline for anyone experiencing distress or despair.
Useful links
Living with a liver condition
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