Julie is marking Organ Donation Week (22-28 September) by sharing her remarkable journey with liver disease to highlight the life-saving importance of organ donation.
Julie was just 12 years old when she started getting stomach pains and a big belly which led to rumours in her community that she was pregnant, when in fact she had autoimmune hepatitis. After being referred to a specialist Julie was in and out of hospital for the next three years as her health deteriorated dramatically. By the time she was 15, Julie’s only hope was a liver transplant.
Julie, now 55, said: “My stomach was now extremely large and my consultant found it hard to believe that my skinny body could bear its weight. I had a lot of doctors round my bed shaking their heads because they didn’t think I would get through the liver transplant operation. I was losing the strength to carry on, but luckily they took the risk.”
By the time a suitable donor was found Julie was getting weaker and weaker and constantly on drips that were feeding her or giving her blood.
Julie said: “When the time came for me to be wheeled me to the operating theatre, my mum and dad came as far as they could, holding my hand. I keep a brave face on but deep down I was scared stiff, not knowing if I was strong enough to pull through and if I would ever see them again.”
After the transplant Julie faced a long road to recovery and had to learn to walk again. When she was finally able to go home, her family and friends put on a special welcome home party for her to which she was driven in a white Rolls Royce. Three years later Julie was back on the transplant list as her body was rejecting the liver, but thankfully a change of medication resolved the issue and she was able to get on with the rest of her life.
Julie said: “I am now 55, fit and well, and have had 40 years of living a normal life and two children, although the pregnancies were not easy.
“I’m so grateful to the doctors, nurses, friends and family who helped give me a life, but most of all the parents who made that difficult decision to donate their young child’s liver. I will never forget the donor, they are always on my mind and the fact that they lost their lives. I will always keep part of them alive with me.”
Figures released by NHS Blood and Transplant in July reveal the stark reality that as of 31 March 2025, a record 8,096 patients were on the active transplant waiting list, including 662 people waiting for a liver.
Pamela Healy, chief executive at the British Liver Trust said: “Liver transplantation is a highly successful treatment for end-stage liver disease and the vast majority of people go on to live full and healthy lives. Sadly however, every year hundreds of people die while on the liver transplant waiting list. This is why it’s so important that people register their decision to become an organ donor and share their wishes with their family. No life-saving transplant would be possible without the generosity of donors and their families, they really do give the most precious gift of life.”
Organ Donation Week aims to encourage people to join the organ donor register and to share their decision with their families.
