Opt-out HIV and hepatitis testing sees nearly 2,000 diagnoses in first year – it must be expanded, says leading charities

June 8, 2023

Today NHS England released the results from the first year of opt-out HIV and hepatitis testing in hospitals in areas with a very high HIV prevalence.

The data shows the programme success is surpassing all expansions and exposing the postcode lottery in hospital testing. The government must fund opt-out HIV testing for the next tranche of A&E departments – high prevalence areas now – as the government’s own guidance recommends, that’s the conclusion of five leading HIV and hepatitis charities.

In just 12 months, more than 1,998 people have been found with HIV, hepatitis B and hepatitis C as a result of opt-out testing 470 of these were people who were previously diagnosed, but were not receiving life changing treatment.

This pioneering approach to testing has saved the NHS millions in care costs because those diagnosed have been able to initiate treatment. Once diagnosed and on effective medication, a person living with HIV can live a long, healthy life and can’t pass on the virus. Hepatitis C can be cleared with medication and treatment can prevent hepatitis B from causing permanent liver damage.

Funding for opt-out testing in the very highest prevalence areas – London, Brighton, Manchester and Blackpool – was allocated as part of the government’s HIV Action Plan in 2021. In February, as a result of campaigning from MPs and council leaders across the country, Public Health Minister Neil O’Brien committed to consider funding for expanding opt-out HIV testing to the next 32 areas and 42 A&Es with a high HIV prevalence. It’s estimated that a further £18 million is needed to implement this for one year.

Scaling up this testing programme is a “no brainer,” according to Terrence Higgins Trust, National AIDS Trust, the Elton John AIDS Foundation, Hepatitis C Trust and the British Liver Trust, who say it’s fundamental to get the country on track to end new cases of HIV and meet ambitious targets on hepatitis.

Pamela Healy, chief executive of the British Liver Trust says: “The first-year data on opt-out testing for hepatitis B and C is clear evidence of its potentially life-saving impact in England. Thousands of individuals live with undiagnosed hepatitis B and C, unaware of their infection as there often no symptoms in the early stages.  If untreated, these viruses can cause liver damage and increase the risk of liver cancer. Finding these individuals through opt-out testing is crucial for their treatment and preventing further transmission.

“NHS data on opt-out testing has revealed a postcode lottery of hepatitis diagnoses, with over 1,000 cases identified in just four cities. Nationwide implementation of opt-out testing could uncover many more cases, saving lives and reducing transmission.”

More news

Update on trials for future treatment of biliary atresia

Update on trials for future treatment of biliary atresia

As many of the young people and families we support are affected by biliary atresia, we’d like to update you on two pieces of research in this area:  Ipsen evaluation of Bylvay  Ipsen have announced the results of their Phase ...
Celebrating a major milestone in the journey to eliminate hepatitis C

Celebrating a major milestone in the journey to eliminate hepatitis C

This week, NHS England announced that more than 100,000 people have received treatment for hepatitis C since the introduction of direct-acting antiviral medicines in 2015. It is a remarkable achievement and one that demonstrates what ...
Shruti’s birthday sky dive in tribute to her dad

Shruti’s birthday sky dive in tribute to her dad

A sky dive is an unusual birthday celebration for someone with a fear of heights but that’s exactly what Shruti Saujani will be doing later this month. The 34-year-old from Leicester is facing her first birthday without her beloved ...
No results found.
Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.