Nellie

Faces of Liver UK

They’re like extended family with the support they have given.

Child with a liver condition

About me

I’m Nellie, I’m four and I was diagnosed with Alagille syndrome when I was three months old. I have an NG tube and have regular hospital visits. My mom (Cara) contacted Liver UK (Children’s Liver Disease Foundation at the time) when I was in hospital at two months old, as we had lots of unanswered questions and we’d never heard of childhood liver diseases. Since then, they have supported us through so much – a real place with amazing people my mom can turn to with any worries or concerns.

Why Liver UK matters

I’m Nellie’s mom, Cara and confirm that Liver UK is a massive part of our support network. They are always there no matter how big or small our worry is. They have supported us through all our journey so far. With hospital stays, problems getting hold of medication, communication issues with the hospital and much more. Since Nellie’s diagnosis me and my family have done some fundraising because we wanted to give back to the charity. They are such a big part of our lives. I can’t put into words how much the charity means to me and Nellie, they’re like extended family with the support they have given.