Whether you’ve known us for years as the Children’s Liver Disease Foundation or you’re finding us for the first time as Liver UK, one thing hasn’t changed: we’re here for children, young people and families affected by liver disease.
While our name has changed, we want to reassure you that the support you know and trust, hasn’t changed at all.
For more than 40 years, we’ve been alongside children, young people and their families through the ups and downs of living with liver disease. We’ve celebrated milestones, answered questions, listened to worries and, most importantly, reminded families that they are never alone.
That is exactly what we’ll continue to do as Liver UK’s Children and Families Service.
I’m Michelle, Head of the Children and Families Service and I want to reassure you that the same friendly team is here to provide trusted information, emotional support and practical guidance whenever you need us. Whether you’ve been part of our community for years or you’ve only just found us, we’re here to walk alongside you.
If you’ve only just found us, we’re sorry it’s because your child has been diagnosed with liver disease. We hope you’ll find comfort in knowing that our team is here to answer your questions, listen to your concerns and support your family every step of the way. A diagnosis can bring a whole range of emotions and questions, and it can be difficult to know where to turn. That’s why we’re here.
These comments from parents we have worked with give you some idea of the ways in which we can make a difference:
“I was feeling overwhelmed with loads of things going on and worried about my daughter. One of the things I was struggling with was her prescription which I couldn’t get at my local hospital. With just one call Kate sorted this out along with some other questions I had about her treatment and appointments. It was a weight off my mind and let me just focus on my daughter.”
“I was confused and scared when my child got their diagnosis. The charity helped me and my son feel less alone, helped me get the right benefits we were entitled to and let us meet other families and children going through something similar to us
“I am so glad I rung you that Friday in desperation, it has made a massive difference to us all in everyday life at home.”
Whether you’re looking for reliable information, someone to talk to, opportunities to meet other families who understand, or support as your child grows and their needs change, you’ll find a warm welcome from our team.
For those families who have been with us over the years, thank you for trusting us to be part of your journey. We hope you’ll continue to feel just as supported as we begin this new chapter as Liver UK.
Our name may be different, but our purpose and commitment are exactly the same: to ensure that every child, young person and family affected by liver disease has the support, information and community they need.
We look forward to continuing to support the families who have been with us for years and to being there for those who are just beginning their journey. Whatever stage you’re at, we’re here for you – because no family should have to face childhood liver disease on their own.



