Advanced liver disease in children

by | Jul 10, 2026

Advanced liver disease

in children

We will be adding more information to this page soon

The information on this page is for:

  • Parents of children with advanced liver disease
  • Family, friends, carers, and healthcare professionals.

 Information about advanced liver disease (cirrhosis) in adults

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Ascites in children
Portal hypertension in children

Support

How Liver UK can help

A diagnosis of liver disease can be worrying, and you may have a lot of questions.

We're here for you and for your family and friends. Whether you have questions or just need someone to listen, we can help.

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Charlie’s story

"I had only just brought my new baby home and now I was being told he needed life-saving surgery  "

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Mahalia’s story

"I remember feeling guilty because she was the healthiest child on the liver ward"

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Charlotte’s story

"The charity provided a space to connect and chat with people in similar situations"

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Summiya’s story

"Knowing what I know now, my advice to other parents in relation to childhood liver disease is to trust your instincts"

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Gemma’s story

"We now know that she should have been referred for a blood test between two and four weeks of age to investigate the causes for her jaundice. Putting her in daylight and breast feeding was never going to clear it.  "

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Niamh’s Yellow Alert story

"Yes, she was jaundiced but we knew that lots of babies are jaundiced so we didn’t really worry about that. The reason our health visitor sent us to hospital at 12 days old was because she noticed a hemangioma"

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Giles’s story

"How BMX led to my liver disease diagnosis"

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Emily’s story

"It’s much easier to explain what’s going on when you have a pack with all the facts available"

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This content was last reviewed: July 2026

 

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