How we make our patient information

What information does the British Liver Trust produce?

Liver UK provides information on all types of liver disease. From some of the most common conditions in the UK to rare inherited conditions. Our information includes details about symptoms, tests, and treatment options. We also share information on liver health and how liver conditions affect daily life.

We offer online information. We also have a variety of booklets and factsheets that you can download, print, or order. For some conditions we also offer videos, webinars and podcasts.

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Language and accessibility

We want everyone to be able to access our information when they need it most. To do this, we:

• use plain English
• explain medical terms
• aim for a reading age at or below the UK average
• structure our information so that it is easy to read and navigate
• offer different levels of detail on some topics
• seek feedback on new pages so we can improve

Information in other languages

We have a small number of publications available in other languages. Our ambition is to extend this in the future.

You can translate our website information using the drop -down menu in the top right corner.

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How can I trust the information?

Expert patient information writers produce our information using reputable sources. Medical experts and patients review it.

Where does the information come from?

Our writers bring together information from a range of sources. This can include:

• UK and international clinical guidelines
• high -quality, up -to -date research, using systematic reviews wherever possible
• information from trusted sources, including the government, NHS, and other major health charities

Sometimes there is unclear, weak, or conflicting evidence. We explain this in our information. We aim to help people get personalised information from their medical team.

We keep a record of the sources used to create our information. If you would like a full list of resources used for a particular page, you can email [email protected]

How is the information checked?

Patients, families, and medical experts check all our information.

Expert medical review

As a minimum, medical information is reviewed by a senior doctor (consultant). They will have experience in treating the condition.

Depending on the information, we may also seek a review from:

• other specialist doctors
• specialist nurses
• other NHS healthcare professionals, such as dietitians, pharmacists and physiotherapists

Medical reviewers check that all information is:

• clinically accurate
• up to date
• shows what should happen in UK, NHS services

For information not directly related to health, we will seek other expert reviewers.

Lived experience review

People with lived experience of liver disease review all information. This can include patients, parents, families and carers.

Our lived experience reviewers ensure our information is:

• clear
• helpful
• realistic

Is the information up to date?

For most patient information pages, you will find the publication date at the bottom of the page.

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1. Systems: Information is created using a consistent and documented process.
2. Training: Staff receive ongoing training and support.
3. Need: Resources meet a genuine need.
4. Evidence: Information is based on reliable, up-to-date evidence which is communicated clearly.
5. Involving users: Users are involved in the development of information.
6. Health inequalities: Information is written to meet health literacy, digital inclusion, language and accessibility needs of the audience.
7. Transparency and legal: Information complies with GDPR, promotion of medicines and other regulations.
8. Feedback: There is a clear process for users to provide feedback.
9. Disseminating: Information is promoted to maximise reach.
10. Impact: The impact of information is measured.

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Do you use AI to produce your information?

Our team of patient information specialists write all our information. We may use AI to help at some stages.

We never use AI:

• to write a first draft
• as a sole or main source of information
• to check for accuracy
• to do final checks

We may use AI tools to help with things like:

• organising notes
• analysing large amounts of information
• checking readability and suggesting specific changes to make something easier to read
• suggesting specific changes to help people find our information online

We do not give anyone’s personal information to an AI.

Help with finding health information online and AI health information

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