Running for Sonny – why Elan is taking on the Hertfordshire Half
A dad of three from Bedford, whose 16-month-old son has a rare liver disease, is training for the Hertfordshire Half Marathon on November 1 in a bid to raise as much as he can for Liver UK. Elan Weedon and his wife, Sophie, have been receiving information and support...
NICE recommends maralixibat for treatment of cholestatic pruritus in Alagille Syndrome
Liver UK is delighted to hear Friday’s announcement from the National Institute for Health and Care Excellence (NICE) that they recommend maralixibat for use within the NHS for treating cholestatic pruritus (severe itch) due to Alagille syndrome in patients two months...
Tribute to Shohanna
The team at Liver UK are saddened to hear that Shohanna, one of our amazing young people, has passed away aged 27. Shohanna, who was born with biliary atresia, received a liver transplant when she was two years old. Her mum Deloris recalls how, once she overcame some...
Update on trials for future treatment of biliary atresia
As many of the young people and families we support are affected by biliary atresia, we’d like to update you on two pieces of research in this area: Ipsen evaluation of Bylvay Ipsen have announced the results of their Phase III BOLD trial evaluating Bylvay...