SMC approves continued use of Odevixibat for PFIC
We are delighted to see that today the Scottish Medicines Consortium has confirmed that Odevixibat (Bylvay) will continue to be available for use by NHS Scotland as a possible treatment for progressive familial intrahepatic cholestasis (PFIC) in people six...
What saying yes to organ donation means to us – a letter to our donor family
Families often have to make the final decision about whether their loved ones organs are donated at the most heart breaking of times. Often organ recipients write letters to their donor family to thank them for their decision and offer a little insight into the lives...
Survey results cast light on life with childhood liver disease
A couple of months ago, we asked people who are affected by a childhood liver disease to tell us about their experiences. We’re incredibly grateful that many of you took the time to respond. This survey has allowed us to hear directly from families, young people...
How my experience as a sibling still inspires me
Two years ago, Doroti wrote a blog about growing up as the older sibling to her brother who received a liver transplant. Doroti shared in her blog that honest communication and opportunity for creative expression can make a significant positive difference to...