Helping parents through those sleepless nights
There are many forms of childhood liver disease and as we often say, every child’s experience is different. One aspect which unites almost all our parents, however, is that liver disease in children seems to invariably lead to a lack of sleep – in children and...
SMC approves continued use of Odevixibat for PFIC
We are delighted to see that today the Scottish Medicines Consortium has confirmed that Odevixibat (Bylvay) will continue to be available for use by NHS Scotland as a possible treatment for progressive familial intrahepatic cholestasis (PFIC) in people six...
There for the difficult moments
Lindsay Hogg, Principal Specialist Nurse at Birmingham Children’s Hospital Liver Unit, explains how Liver UK’s Children’s and families team provides a vital lifeline to patients and families. The Liver UK Children and Families Team do vital work for our...
What saying yes to organ donation means to us – a letter to our donor family
Families often have to make the final decision about whether their loved ones organs are donated at the most heart breaking of times. Often organ recipients write letters to their donor family to thank them for their decision and offer a little insight into the lives...