Why you can talk even if they don’t want to
Our Children and Families’ Service is exactly that – for families as well as children. It means we’re here for you even if your child doesn’t want any support whatsoever. Jade’s nine-year-old daughter was diagnosed with biliary atresia as a baby and, when...
Top tips for those long hospital stays
We’re always saying how important it is for parents of children with liver disease to take care of themselves. This is often easier said than done, particularly if your child has to spend long spells in hospital. Clare knows more about this than most. Her son, Harry,...
Hive Hangouts prompted Holly’s walk
Twelve-year-old Holly, who has biliary atresia, really enjoys the monthly Hive Hangouts, where she gets to catch up with Louise, CLDF’s young people’s officer, and other young people in her situation. “Holly loves these monthly meetings. She makes sure she takes...
I did not appreciate being singled out
It’s always valuable to hear young people’s experiences of growing up with a liver condition and we’re particularly grateful to Mo, now 17, for the brilliant account of his journey which we’re going to share across a few blogs. In the first one he takes us back to his...