Biliary cystadenoma
Also called: mucinous cystic neoplasms of the liver, liver MCNs, biliary cystadenocarcinoma, complex cysts
The information on this page is for:
- Adults with biliary cystadenoma or suspected biliary cystadenoma.
- Family, friends, carers, and healthcare professionals.
On this page:
Quick Summary
Biliary cystadenoma:
- Biliary cystadenoma if a very rare condition.
- There is usually only one large cyst in your liver.
- It is more common in women.
- It is not yet clear what causes biliary cystadenoma.
- Symptoms include tummy pain and feeling full.
- In some cases biliary cystadenoma can cause cancer
- Treatment is usually a liver operation.
Find out more about biliary cystadenoma on this page.
What is biliary cystadenoma?
Biliary cystadenoma is a very rare condition where a large cyst forms in your liver. It is much more common in women than in men.
It is extremely rare in children with only a handful of cases reported worldwide.
Liver cysts are often found by accident when you have a scan for something else. But most of these are a different type of cysts called a simple cyst. You can find out more about simple cysts here.
Biliary cystadenomas are different to simple cysts. They are much rarer. And can look different on a scan. But sometimes doctors can only be sure which type of cyst you have after you have an operation to treat it.
Biliary cystadenoma can sometimes cause cancer. So you could need to have an operation on your liver to prevent this. The risk of cancer is usually low. But it is different for everyone. You should discuss your individual risk with your consultant
Symptoms of biliary cystadenoma
Many people with biliary cystadenoma will have no symptoms. If you do have symptoms they can be a bit different for everyone. And can be similar to the symptoms of a lot of other conditions. The most common symptoms of biliary cystadenoma are:
- feeling full, as if you have eaten a big meal when you have not
- tummy pain
- a swollen tummy
Tests for biliary cystadenoma
Biliary cystadenoma is very rare, and the symptoms are like those for more common conditions. So you might have a lot of tests before you get a diagnosis.
The first tests you have will probably include a liver blood test and an ultrasound scan. If these tests find a possible problem then you will have an MRI or CT scan to take a closer look.
You can find out more about these tests in the drop down boxes below.
Liver blood tests
Anyone with symptoms of liver disease should have a liver blood test. Some doctors still use the old term Liver Function Test (LFT). This test will look at several things in the blood. It cannot diagnose biliary cystadenoma. But it can give doctors an idea of how the liver is doing. And help to rule out more common liver problems.
Ultrasound scan
An ultrasound scan is quick and shouldn’t hurt. A wand is placed on the skin. The wand uses sound waves to get a picture of the liver and any cysts that are in it.
MRI scan
An MRI scan uses magnets and radio waves to build up a picture of the inside of the body. It does not use X-rays and is very good at looking at the soft parts of the body, such as the liver.
An MRI scan usually takes about half an hour. The scanner is a tube. You will lie on a bed that moves into the tube. The scanner can be very loud, so you will be asked to wear headphones.
CT scans
A CT scan will take a series of X-rays and use a computer to put them together to make a detailed picture.
A CT scan takes about half an hour. The scanner looks like a ring doughnut. You will lie on a bed that will move in and out of the hole in the middle of the ring.
Treatment for biliary cystadenoma
Biliary cystadenomas usually need treatment. They can make you feel very unwell and there is a chance of “malignant transformation”. This is where the biliary cystadenoma becomes a type of cancer.
Liver surgery
A type of surgery called a liver resection is considered the “gold standard” treatment for biliary cystadenoma.
This is an operation to remove the part of your liver with the cyst in it. Removing the cyst will mean that it cannot cause cancer. Your liver has an amazing ability to repair itself. It can get back to its normal size a few months after successful surgery.
But it is a big operation. Talk to your doctor about the risks and benefits in your case. These will be a bit different for everyone. You can also ask about practical things. Like how long you will be in hospital for, how long it will take to recover and how you can manage pain after the operation.
There can be a lot to take in at an appointment. It might help to write a list of questions before you arrive. You can also take someone with you or ask to record the appointment on your phone.
After surgery
If possible, arrange to have some help for when you come out of hospital. You might find it hard to do all your normal tasks and activities for a few weeks. You can also feel more tired than normal for a few months while your liver recovers.
Most biliary cystadenomas do not cause cancer. It is unlikely that they will come back again after surgery. Biliary cystadenomas that had already become cancerous are more likely to come back again. After surgery your cyst will be looked at in a lab. Doctors will be able to tell you if there is a risk of cancer and what the next steps are.
You can find out more about bile duct cancer here
Living with biliary cystadenoma
The symptoms of biliary cystadenoma can make life difficult. If you are finding it hard to eat you can lose weight and might not be getting all the nutrients that you need. If this happens speak to your doctor and ask to be referred to a registered NHS dietician. We have more information about coping with eating difficulties here.
The link between biliary cystadenoma and cancer can be worrying. Most cases of biliary cystadenoma do not cause cancer. But it is understandable to be concerned. Sometimes doctors can get an idea of the risk by looking at scans. They will be able to tell you more after the cyst is removed.
If you find that worry is having an impact on your mental health, we have information online about simple things that can help. There are also links to other organisations that can offer support.
Useful links
Liver cysts
Benign liver tumours
Liver cancer
Support
How Liver UK can help
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This content was last reviewed: August 2023
Our expert reviewers:
We would like to thank everyone who helped with creating and reviewing this page. Including Dr Abid Suddle, King’s College hospital NHS foundation trust. And all our patient reviewers.
Find out how we make our patient information.
Everyone’s experience of liver disease will be different. Always talk to your specialist medical team for personal advice.
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